Providing
contact, support and information to people with Arthrogryposis and
those concerned with their care.
The Arthrogryposis Group (TAG) is the national organisation in the UK for the condition Arthrogryposis Multiplex Congenita (AMC). The aims of TAG are:-
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To offer contact, information and support to people with AMC and their families |
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To provide information to professionals and other interested parties seeking to increase their knowledge of AMC |
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To encourage public and professional awareness of AMC |
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To encourage and support the integration of people with AMC within the community |
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To further research in the field of AMC |
TAG provides contact and information in a number of ways. The quarterly newsletter, TAGTalk, keeps everyone in touch and features news from members as well as regular articles from the Committee and Regional Contacts, dates of meetings, news on any research developments and lots of other helpful information too.
The Annual National TAG Weekend gives members the opportunity to meet others in a relaxed and informal atmosphere. There are talks on a wide variety of topics for the adults and outings or a crèche for the children. Many of the presentations are published in reports so that all TAG members benefit from the knowledge gained. The reports are also requested by members of the medical profession and other interested parties.
TAG distributes a regional contact list to members giving the names and addresses of members who are happy to hear from others within the group. Members can then get in touch for example with someone who has a child of a similar age or their nearest member.
Our Regional Contacts keep in touch with the members in their area through personal contact, letters, 'phone calls, and social events. The regional get-togethers enable members to meet up with other members in their region and include anything from a Summer Barbecue, an 'At-home', to a Christmas Party.
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Full membership is open to all adults with arthrogryposis and parents or guardians of people of any age who have the condition. Associate membership is available to adults who have an interest in the condition, e.g. members of the medical profession, friends and relatives. |